A regional initiative has been launched across Africa to help countries strengthen sickle cell disease care. 

The Imara Sickle Cell Framework, led by African health leaders and partners, is designed to translate policy priorities into practical, coordinated care delivery within national health systems. 

Initial implementation has begun in Uganda, Kenya and Côte d’Ivoire, offering an approach which could be adapted to national systems and local needs in the fight against sickle cell disease. 

Sickle cell disease remains one of Africa’s most significant public health challenges. Recent data points to the continent accounting for nearly 80% of the global burden and hundreds of thousands of children born with the condition each year.  

While awareness, screening and treatment access have improved in recent years, many patients still face fragmented care, delayed diagnosis and limited follow-up.   

“Families need support beyond diagnosis, including regular treatment and follow-up care close to home,” said Dr Chris Baryomunsi, Minister of Health of Uganda.  

“This initiative supports our commitment to improving survival and quality of life for children living with sickle cell disease and strengthening access to care across the country.” 

 “Sickle cell disease remains a significant health challenge for Kenya, particularly for children and families who depend on early diagnosis and lifelong care,” added Dr Ouma Oluga, Principal Secretary, State Department for Medical Services, Ministry of Health, Kenya.  

“Through the Social Health Authority, we are strengthening access to diagnosis, treatment and safe blood. The Imara Framework helps connect these services into a more coordinated system of care so that patients receive the support they need throughout their lives.”